A few phone calls today got Bob an appointment with his cardiologist right away tomorrow morning (when Bob's primary care nurse couldn't get him in until the end of July), and the surgeon's nurse on the ball to start coordinating for surgery. The main deal is his heart doc needs to give his blessing, that Bob's recovered well enough from a cardiac standpoint, to proceed with surgery. Why does all of this feel so strangely familiar . . . played phone tag with his palliative care doc today, too. Haven't seen her since Bob was hospitalized in the beginning of June, after the latest heart attack, but haven't seen or heard from her since. Left a message that we're in the process of getting the surgery back on track, but in the meantime, does she have any suggestions about what to do for the increase in pain? Bob does have a boatload of Neurontin, a nerve pain medication that was stopped a while back, for some reason, and I asked if it'd be okay to maybe start that back in small doses, since he's being tapered off the steroid. She called back when I wasn't by my phone, and left a message saying he should be okay to try the Neurontin again, but sounded kind of irritated that the steroid was being tapered in the first place . . . because the shit choked his adrenal glands a good enough answer? I do want to talk to her specifically about that, so another phone call will happen tomorrow.
Quite day at the home front today. Lots of sleeping, some good meals in, a walk or two outside for fresh air, more sleep. The pain in Bob's leg keeps him from being on his feet for long, so long stretches of sleep are punctuated by bits of activity. I am grateful for these quiet days, these restful days, even though Bob is in more pain, he's mentally with me, he's eating well, he is getting up and about, just not as much as before. I guess the trade-off for mental clarity is more pain. . . and hard to say which is worse . . .
It's getting late, should hit the hay, as it'll be a long stretch in the heart of rush hour tomorrow a.m. Funny how it seems like ancient history, the last time Bob was in the hospital, and I did that drive at least twice a day, some days. . . I'm sure my awesome rush hour driving tactics are gonna be a little rusty . . .
Sending you two lots of love, strength, and prayers. We'll try to get out soon--sorry it didn't work today, but don't want to risk compromising Bob's immune system in any way. Amelia's stick coughing, and has a terribly runny nose, so best we stay away until she's better.
ReplyDeleteLove you two to the moon.
xoxoxoxo
Jill, Jade, and Ameliabean